ABC News Fatal Disease Takes Kids Vision Mobility

While Children Suffer From Degenerative Disease, Parents Search for a Treatment.

At age 4, Nathan Milto was a typical preschooler: he enjoyed singing songs, playing on the computer and practicing hockey slap shots with his Dad in the basement of their Indianapolis home.

Nathan and P.J. Milto were both diagnosed with a rare degenerative neurological disease at ages five... Nathan and P.J. Milto were both diagnosed with a rare degenerative neurological disease at ages five and four, respectively. The disease quickly stripped them of their vision, ability to speak and eventually walk. Today, the boys are bedridden and on feeding tubes while their parents search for a cure. But in a just a few months, a rare neurodegenerative disorder known as Late Infantile Batten disease would transform Nathan's happy childhood into a living nightmare.

By his fifth birthday, the disorder had caused Nathan to lose his eyesight, and at age 6 he was put on a feeding tube. "We had absolutely no idea this would happen," said Tricia Milto, Nathan's mother. "He was a perfect baby – Nathan actually hit all his milestones three to six months ahead of where he should be – until he turned four."...

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