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This topic provides information for teens and their parents and for adults who have type 1 diabetes. Before reading this topic, you may want to read Type 1 Diabetes: Recently Diagnosed.
If this topic does not answer your questions, see:
Type 1 diabetes is a lifelong disease that develops when the pancreas stops making insulin. Your body needs insulin to let sugar (glucose) move from the blood into the body's cells, where it can be used for energy or stored for later use.
Everyone experiences type 1 diabetes differently. But the treatment is the same. You need to take insulin, eat a balanced diet that spreads carbohydrate throughout the day, and exercise. Part of your daily routine also includes checking your blood sugar levels regularly, as advised by your doctor.
The goal is to keep your blood sugar in a target range. It is the best way to reduce your chance of having more problems from diabetes. These are called complications.
Taking care of your diabetes takes time and energy every day. It is a big part of your life. But it will help you feel better and may prevent, or at least delay, complications. If your teen has diabetes, tight control of blood sugar levels may help prevent complications from developing in early adulthood.
It's important to watch for signs of low and high blood sugar:
Both low and high blood sugar can cause problems and need to be treated. Check your blood sugar often during the day.
Over time, high blood sugar can damage blood vessels and nerves throughout your body. This can cause problems with your eyes, heart, blood vessels, nerves, and kidneys. Complications can lead to blindness, kidney failure, amputation, and death. High blood sugar also makes you more likely to get serious illnesses or infection. It's hard to know if you will have complications. Some people are more likely to have problems than others. The longer you have diabetes, the greater your risk of complications. You are not likely to have signs of complications until you have had diabetes for about 5 years.
Watch for early symptoms of problems. Tingling and numbness in your feet may be a sign of early nerve damage. Eye problems and kidney damage do not have early symptoms. Make sure you have regular screening tests for both eye and kidney problems.
You may be able to prevent, or at least delay, problems from diabetes by keeping your blood sugar level within a target range. Treatment of high blood pressure and high cholesterol can also help. Not smoking can also lower your risk of complications.
See your doctor every 3 to 6 months. During these visits, your doctor will review your treatment and do tests and exams to see if your blood sugar is staying within your target range and if you have developed any complications.
Some exams and tests need to be done at every visit. Others are done once a year, such as eye exams and tests for protein in your urine. Other tests may be done only if there is a problem.
Your insulin dose, possibly the types of insulin, and the way you give it may change over time to fit your changing needs. This is especially true for teens because they are still growing.
The goal of treatment is to always keep your blood sugar level as close to your target range as you can. To meet this goal, take care of yourself, get regular checkups, and keep learning about how to care for yourself.
Frequently Asked Questions
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You have type 1 diabetes because your pancreas can no longer produce insulin. When your pancreas was working, it adjusted the amount of insulin it made based on your changing blood sugar. But insulin injections cannot control your blood sugar moment to moment, as your pancreas would. As a result, you will have high and low blood sugar levels from time to time.
Treating type 1 diabetes with insulin injections means you may have high and low blood sugar from time to time.
High blood sugar usually develops slowly over hours or days, so you can take steps to correct it before your symptoms become severe and require medical attention. On the other hand, your blood sugar level can drop to dangerously low levels within 10 to 15 minutes of exercising or taking insulin without eating enough. You also can get low blood sugar if you have previously taken intermediate- or long-lasting insulin and skip a meal.
The longer you have diabetes, the more likely you are to develop complications. You are not likely to develop signs of complications from diabetes until you have had the disease for about 5 years. Still, you should watch for complications. Signs may include:
You will not have symptoms of kidney problems (diabetic nephropathy) until severe damage has developed. Then you may notice swelling in your feet, legs, and throughout your body. Having regular tests for protein in your urine is the only way to detect kidney damage before symptoms develop.
Your experience with type 1 diabetes will be different from that of other people. But your treatment will be the same: taking insulin, eating a balanced diet that spreads carbohydrate throughout the day, getting regular exercise, and checking your blood sugar levels.
If you work closely with your doctor and follow your treatment, you will feel better and more in control of your life. You also may prevent or delay complications.
Not everyone with diabetes develops complications from the disease. Keeping blood sugar levels within a target range may prevent or delay complications. If your teen with diabetes controls his or her blood sugar, he or she can avoid developing complications in young adulthood.
Injected insulin cannot perfectly match the action of a working pancreas, so you will have high and low blood sugar levels from time to time. If your blood sugar stays above your target range for a long time, your blood vessels and nerves may be damaged. This damage can lead to:
People with diabetes often already have other health problems. These may include high blood pressure and high cholesterol. Or they may develop other health problems as diabetes progresses. These conditions, along with smoking, can cause diabetes complications or can make existing ones worse. Not smoking and controlling your blood pressure and cholesterol level can help prevent or help slow complications.
Studies have found that teen girls are at higher risk than other people for diabetic ketoacidosis: they may skip insulin doses to lose weight.1
Eating disorders are also common among teens and young adults with diabetes. Eating disorders and the tendency to skip insulin injections can cause swings in blood sugar levels outside the target range. Eating disorders need to be diagnosed and treated as quickly as possible to prevent serious health problems.
Type 1 diabetes puts you at risk for high and low blood sugar and complications.
It is hard to know why some people develop complications and others do not. Factors that contribute to the risk of complications include:
Call 911 or other emergency services right away if you are:
Call a doctor right away if:
Call a doctor if you:
Health professionals involved in your treatment may include:
If you begin to have symptoms of complications from diabetes, you may be referred to:
To prepare for your appointment, see the topic Making the Most of Your Appointment.
You need to see your doctor about every 3 to 6 months throughout your life for tests and exams to see how you are doing and to adjust your treatment for type 1 diabetes.
After you have had diabetes for 3 to 5 years, you will need annual tests to look for signs of eye damage (diabetic retinopathy), kidney damage (diabetic nephropathy), and less feeling in your feet (diabetic neuropathy).
You may also need:
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More Information: |
The goal of treatment for type 1 diabetes is to keep your blood sugar levels within a target range and to reduce the risk for complications. Daily diabetes care and regular medical checkups will help you stay healthy.
Keeping your blood sugar in a target range is the best way to reduce your chance of diabetes complications.
A target-range blood sugar level is 70 mg/dL to 130 mg/dL before eating or less than 180 mg/dL 1 to 2 hours after eating. It also may be measured as a hemoglobin A1c of less than 7%. This is a test of your blood sugar control for the past 2 to 3 months.
Your daily care includes:
You will also need to:
You may also want to know:
See your doctor about every 3 to 6 months for the rest of your life. During these checkups, your doctor will look at your treatment and adjust it, if needed. Other exams and tests will be done according to a recommended schedule. After you have had diabetes for 3 to 5 years, you will start having annual exams and tests to monitor for eye and kidney damage.
If you aren't taking enough insulin, have a severe infection or other illness, or become severely dehydrated, your blood sugar level may rise very high. This can cause diabetic ketoacidosis (DKA), which is usually treated in a hospital and often in the intensive care unit (ICU). There you are watched closely and get frequent blood tests for glucose and electrolytes. You will get insulin through a vein (intravenous, or IV) to bring your blood sugar levels down.
You also will get fluids through the IV and treatment to correct electrolyte problems in your body. These electrolyte problems are typically with potassium and phosphorous. You may have to stay in the hospital for a few days to get your blood sugar level back into your target range.
Low blood sugar (hypoglycemia) means that the level of sugar (glucose) in your blood has dropped below what your body needs to function normally. When your blood sugar level drops below 70 mg/dL, you most likely will have symptoms such as feeling tired, weak, or shaky. Symptoms of low blood sugar can develop quickly. If you eat something that contains sugar, these symptoms may only last a short time. But if your blood sugar continues to drop, you could lose consciousness or have a seizure. If you have symptoms of severe low blood sugar, you need medical care immediately.
The 10-year Diabetes Control and Complications Trial (DCCT) and follow-up Epidemiology of Diabetes Interventions and Complications (EDIC) study showed that keeping blood sugar levels within a target range helps decrease your chances of developing complications from diabetes, such as eye, kidney, heart, blood vessel, and nerve damage. As a result of this study, experts recommend that you carefully control your blood sugar. This is often referred to as strict or tight blood sugar control.
If you tightly control your blood sugar levels, you reduce your risk for long-term complications. But you are also more likely to have episodes of very low blood sugar. These episodes can be dangerous unless you treat them early.
Studies are ongoing to find painless ways for people with diabetes to test their blood sugar and give themselves insulin, such as through insulin pumps, improved needles, and inhaled insulin. Ways to prevent or decrease complications from diabetes also are being studied. Talk to your doctor if you would like to participate in these diabetes studies.
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Taking insulin for type 1 diabetes helps keep your blood sugar within your target range. But insulin by injection cannot exactly match the minute-by-minute adjustments your pancreas would make on its own. So you will have low and high blood sugar from time to time.
You can prevent many of these episodes by:
For more information, see:
Keeping your blood sugar levels carefully within a target range is the most effective way to prevent complications. The higher your blood sugar level, the greater your risk for developing complications. A teen who keeps his or her blood sugar levels within a target range can prevent complications from developing in early adulthood.
You can also help prevent these complications by:
Type 1 diabetes requires daily attention to diet, exercise, and insulin. You may have times when this job feels overwhelming, but taking good care of yourself will help you will feel better, have a better quality of life, and prevent or delay complications from diabetes.
Follow one of these meal-planning methods to help you eat a healthful diet and spread carbohydrate through the day. This will help prevent high blood sugar levels after meals. For more information, see:
Focus on the type of carbohydrate as well as the amount. This might help you stay at your target blood sugar level. Foods with a low glycemic index (GI) may help prevent spikes in blood sugar. It is not yet known if these foods help prevent complications. Low glycemic foods do not raise blood sugar as quickly as high glycemic foods. Foods with a low GI include high-fiber whole grains, lentils, and beans. High GI foods include potatoes and white bread.
Using fat replacers-nonfat substances that act like fat in a food-may seem like a good idea, but talk with a registered dietitian before you do. Some people may eat more food, and therefore more calories, if they know a food contains a fat replacer.
Make sure you know how to give yourself insulin.
If you are using an insulin pump or an insulin pen, make sure you know how to use them properly.
Try to do at least 2½ hours a week of moderate activity. One way to do this is to be active 30 minutes a day, at least 5 days a week. Be sure to exercise safely. Drink plenty of water before, during, and after you are active. This is very important when it's hot out and when you do intense exercise. It may help to keep track of your exercise on an activity log(What is a PDF document?).
Checking your blood sugar level is a major part of controlling your blood sugar level and keeping it in a target range you set with your doctor. For more information, see the topic Continuous Glucose Monitoring or see:
Be sure you:
Limit your alcohol intake to no more than 2 drinks a day for men and 1 drink a day for women (none if you are pregnant). Discuss with your doctor whether you should drink alcohol.
Talk to your doctor about whether you should take low-dose aspirin. Daily low-dose aspirin (81 milligrams) may help prevent heart problems if you are at risk for heart attack or stroke. People with diabetes are 2 to 4 times more likely than people who don't have diabetes to die from heart and blood vessel diseases.5
A chronic illness creates major change in your life. You may need to grieve the loss of your earlier life from time to time. Also, you may feel resentful, deprived, or angry about having to pay attention to what and how much you eat. For more information, see:
Daily foot care can prevent serious problems. Foot problems caused by diabetes are the most common cause of amputations. For more information, see:
Diabetes is a complex disease and there is a lot to learn, such as:
Everyone with type 1 diabetes needs to take insulin. You are probably taking more than one type of insulin, either as an injection or by using an insulin pump.
The amount and type of insulin you take will likely change over time, depending on changes that occur with normal aging, changes in your exercise routine, and hormonal changes (such as during rapid growth of adolescence or pregnancy). You may need higher doses of insulin when you are ill or experiencing emotional stress. A woman needs much more insulin than usual during the last part of pregnancy.
Learn about insulin:
You may need other medicines at some point in your life.
Surgery is not a routine way of treating type 1 diabetes. You are eligible for surgery only if you meet specific criteria.
Pancreas and islet cell transplants are very expensive. After having one of these surgeries, you must take immunosuppressive medicines for the rest of your life to prevent your body from rejecting the new tissue.
The success rate for pancreas transplants has improved with new surgical techniques and new immunosuppressive medicines. Islet cell transplants may replace pancreas transplants in the future but for now they are experimental.
You will hear about products that promise a "cure" for type 1 diabetes. Avoid them. No such cure exists. Also avoid products for treating diabetes that are advertised only by testimonials from satisfied customers. These products or remedies may be harmful and costly. They also might cause you to delay or avoid getting other forms of treatment that have been proved to work. If you have questions about a product for diabetes, check with your local American Diabetes Association office, your doctor, or a diabetes educator.
Other types of treatment for diabetes are provided by therapists or others who do not operate within mainstream medical practice. Their unconventional approaches may be attractive, particularly if you are not having much success with conventional medical treatments. None of these complementary therapies are proved to effectively treat diabetes.
But you may benefit from safe, nontraditional therapies that complement conventional medical treatment for your disease. Complementary therapies, such as acupuncture, massage, or biofeedback, for instance, may help reduce stress, relieve muscle tension, and improve your overall well-being and quality of life.
You should not use complementary therapies alone to treat your diabetes.
Talk with your doctor if you are using the following or other complementary or alternative therapies:
| American Association of Diabetes Educators | |
| 200 West Madison Street | |
| Suite 800 | |
| Chicago, IL 60606 | |
| Phone: | 1-800-338-3633 |
| Fax: | (312) 424-2427 |
| Email: | aade@aadenet.org |
| Web Address: | www.diabeteseducator.org |
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The American Association of Diabetes Educators is made up of doctors, nurses, dietitians, and other health professionals with special interest and training in diabetes care. The Web site can supply the names of these types of health professionals in your local area. |
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| American Diabetes Association (ADA) | |
| 1701 North Beauregard Street | |
| Alexandria, VA 22311 | |
| Phone: | 1-800-DIABETES (1-800-342-2383) |
| Email: | AskADA@diabetes.org |
| Web Address: | www.diabetes.org |
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The American Diabetes Association (ADA) is a national organization for health professionals and consumers. Almost every state has a local office. ADA sets the standards for the care of people with diabetes. Its focus is on research for the prevention and treatment of all types of diabetes. ADA provides patient and professional education mainly through its publications, which include the monthly magazine Diabetes Forecast, books, brochures, cookbooks and meal planning guides, and pamphlets. ADA also provides information for parents about caring for a child with diabetes. |
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| Juvenile Diabetes Research Foundation International | |
| 120 Wall Street | |
| New York, NY 10005-4001 | |
| Phone: | 1-800-533-CURE (1-800-533-2873) |
| Fax: | (212) 785-9595 |
| Email: | info@jdrf.org |
| Web Address: | http://www.jdrf.org |
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The Juvenile Diabetes Research Foundation International is dedicated to finding a cure for type 1 diabetes and its complications. The organization funds research on type 1 diabetes, including research on prevention and treatment. This organization publishes a wide variety of booklets, magazines, and e-newsletters on complications and treatments of type 1 diabetes. |
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| National Diabetes Education Program (NDEP) | |
| 1 Diabetes Way | |
| Bethesda, MD 20814-9692 | |
| Phone: | 1-800-438-5383 to order materials (301) 496-3583 |
| Email: | ndep@mail.nih.gov |
| Web Address: | http://ndep.nih.gov |
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The National Diabetes Education Program (NDEP) is sponsored by the U.S. National Institutes of Health (NIH) and the U.S. Centers for Disease Control and Prevention (CDC). The program's goal is to improve the treatment of people who have diabetes, to promote early diagnosis, and to prevent the development of diabetes. Information about the program can be found on two Web sites: one managed by NIH (http://ndep.nih.gov) and the other by CDC (www.cdc.gov/team-ndep). |
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| National Diabetes Information Clearinghouse (NDIC) | |
| 1 Information Way | |
| Bethesda, MD 20892-3560 | |
| Phone: | 1-800-860-8747 |
| Fax: | (703) 738-4929 |
| TDD: | 1-866-569-1162 toll-free |
| Email: | ndic@info.niddk.nih.gov |
| Web Address: | http://diabetes.niddk.nih.gov |
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This clearinghouse provides information about research and clinical trials supported by the U.S. National Institutes of Health. This service is provided by the National Institute of Diabetes and Digestive and Kidney Disease (NIDDK), a part of the National Institutes of Health (NIH). |
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Citations
- Orr DP (2008). Diabetes mellitus. In LS Neinstein, ed., Adolescent Health Care: A Practical Guide, 5th ed., pp. 170–178. Philadelphia: Lippincott Williams and Wilkins.
- American Diabetes Association (2004). Retinopathy in diabetes. Clinical Practice Recommendations 2004. Diabetes Care, 27(Suppl 1): S84–S87.
- American Diabetes Association (2004). Nephropathy in diabetes. Clinical Practice Recommendations 2004. Diabetes Care, 27(Suppl 1): S79–S83.
- U.S. Centers for Disease Control and Prevention (2008). National Diabetes Fact Sheet 2007. Atlanta: U.S. Department of Health and Human Services. Available online: http://www.cdc.gov/diabetes/pubs/pdf/ndfs_2007.pdf.
- American Diabetes Association (2012). Standards of medical care in diabetes—2012. Diabetes Care, 35(Suppl 1): S11–S63.
Other Works Consulted
- Campbell AP, Beaser RS (2007). Designing a conventional insulin treatment program. In RS Beaser et al., eds., Joslin's Diabetes Deskbook, pp. 281–323. Boston: Joslin Diabetes Center.
- Campbell AP, Beaser RS (2007). Medical nutrition therapy. In RS Beaser et al., eds., Joslin's Diabetes Deskbook, pp. 81–125. Boston: Joslin Diabetes Center.
- Eisenbarth GS, et al. (2008). Type 1 diabetes mellitus. In PR Larsen et al., eds., Williams Textbook of Endocrinology, 11th ed., pp. 1391–1416. Philadelphia: Saunders Elsevier.
- Masharani U, German MS (2007). Pancreatic hormones and diabetes mellitus. In DG Gardner et al., eds., Greenspan's Basic and Clinical Endocrinology, 8th ed., pp. 661–747. New York: McGraw-Hill.
| By | Healthwise Staff |
|---|---|
| Primary Medical Reviewer | John Pope, MD - Pediatrics |
| Specialist Medical Reviewer | David C.W. Lau, MD, PhD, FRCPC - Endocrinology |
| Last Revised | November 5, 2010 |
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Author: Healthwise Staff
Medical Review: John Pope, MD - Pediatrics & David C.W. Lau, MD, PhD, FRCPC - Endocrinology
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