It is possible that the main title of the report Klippel-Trenaunay Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Klippel-Trenaunay Syndrome, a rare disorder that is present at birth (congenital). Klippel-Trenaunay syndrome consists of the triad of cutaneous capillary malformation (port-wine stain), bone and soft tissue hypertrophy, and venous varicosities. Lymphatic malformations also can be present. The symptoms and findings associated with the disorder vary in range and severity from case to case.
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Klippel-Trenaunay Support Group
5404 Dundee Road
Edina, MN 55436
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
8 Silver Ave
Ontario, Intl M6R 1X8
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
PO Box 241956
Los Angeles, CA 90024
National Organization of Vascular Anomalies
PO Box 38216
Greensboro, NC 27438-8216
4581 Magnolia Dr.
Suffolk, VA 23435
Venous Disease Coalition
1075 S. Yukon Street, Suite 320
Lakewood, CO 80226
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 11/14/2008
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