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It is possible that the main title of the report Status Epilepticus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Status epilepticus (SE) is considered a neurological emergency. Left untreated (or undertreated), prolonged seizures can cause permanent neurological injury or death. Rapid treatment must be initiated. If initial agents fail, it may be necessary to induce an iatrogenic coma. In any case, the person in status epilepticus must be closely watched, and often requires continuous EEG in order to confirm that the seizures have stopped not only clinically but electrically as well.
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
8301 Professional Place
Landover, MD 20785-7223
PHP - Parents Helping Parents, Inc.
Sobrato Center For Nonprofits San Jose
1400 Parkmoor Avenue,
Santa Clara, CA 95126
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
AED Pregnancy Registry - Massachusetts General Hospital
121 Innerbelt Road, Room 220
Somerville, MA 02143
American Epilepsy Society
342 North Main Street
West Hartford, CT 06117-2507
2900 John St., Suite 402
Ontario, L3R 5G3
Organisation For Anti-Convulsant Syndrome
131 Summertrees Road
Cheshire, CH66 2BE
New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
P.O. Box 797
Deale, MD 20751
LGS Foundation, Inc.
192 Lexington Avenue
New York, NY 10016
St. Piers Lane
Surrey, RH7 6PW
Child Neurology Foundation
2000 West 98th Street
Bloomington, MN 55431
CURE: Citizens United for Research in Epilepsy
223 W. Erie
Chicago, IL 60654
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 1/3/2007
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