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Lupus

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Lupus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Disseminated lupus erythematosus
  • Lupus erythematosus

Disorder Subdivisions

  • Systemic lupus erythematosus (SLE)
  • Discoid lupus erythematosus (DLE)
  • Drug-induced lupus erythematosus

General Discussion

Lupus is a chronic, inflammatory autoimmune disorder affecting the connective tissue. In autoimmune disorders, the body's own immune system attacks healthy cells and tissues causing inflammation and malfunction of various organ systems. In lupus, the organ systems most often involved include the skin, kidneys, blood and joints. Many different symptoms are associated with lupus, and most affected individuals do not experience all of the symptoms. In some cases, lupus may be a mild disorder affecting only a few organ systems. In other cases, it may result in serious complications.

There are at least three forms of lupus: the classic form, systemic lupus erythematosus; a form that only affects the skin, discoid lupus erythematosus; and drug-induced lupus erythematosus. The term lupus is most often used to denote systemic lupus erythematosus.

Resources

American Juvenile Arthritis Organization
1330 West Peachtree Street, Suite 100
Atlanta, GA 30309
USA
Tel: (404)965-7624
Fax: (404)872-9559
Tel: (800)568-4045
Email: help@arthritis.org
Internet: http://www.arthritis.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Ave.
Eastpointe, MI 48021
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

Lupus Foundation of America, Inc.
2000 L Street NW
Suite 710
Washington, DC 20036
USA
Tel: (202)349-1155
Fax: (202)349-1156
Tel: (800)558-0121
Email: info@lupus.org
Internet: http://www.lupus.org

Arthritis Foundation
1330 West Peachtree Street, Suite 100
Atlanta, GA 30309
USA
Tel: (404)872-7100
Tel: (800)283-7800
Email: arthritisfoundation@arthritis.org
Internet: http://www.arthritis.org

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/

Lupus Canada
3555 14th Avenue, Unit #3,
Markham
Ontario, L3R 0H5
Canada
Tel: (905) 513-0004
Fax: (905) 513-9516
Tel: (800) 661-1468
Email: info@lupuscanada.org
Internet: http://www.lupuscanada.org

Cicatricial Alopecia Research Foundation
9300 Wilshire Blvd.
Suite 410
Beverly Hills, CA 90212
USA
Tel: (310)801-3450
Email: info@carfintl.org
Internet: http://www.carfintl.org

Erythema Nodosum Yahoo Support Group
Internet: http://health.groups.yahoo.com/group/erythema_nodosum_Group/

CNS Vasculitis Foundation
9930 Morningfield
San Antonio, TX 78250-3743
USA
Tel: (210)523-8234
Email: info@cnsvf.org
Internet: http://www.cnsvf.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Lupus Society of Alberta
Suite 200, 1301 - 8 St. SW
Calgary Alberta, T2R 1B7
Canada
Tel: 4032287956
Fax: 4032287853
Tel: 8882429182
Email: lupuslsa@shaw.ca
Internet: http://www.lupus.ab.ca

Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030
Chicago, IL 60637
Tel: (773)702-5659
Fax: (773)702-5577
Internet: http://peripheralneuropathycenter.uchicago.edu/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc.
PO Box 4121
Brick, NJ 08723
Fax: (732)543-7285
Email: autoimmunehelp@aol.com

APS Foundation of America
PO Box 801
La Crosse, WI 54602-0801
Tel: (608)782-2626
Fax: (608)782-6569
Email: apsfa@apsfa.org
Internet: http://www.apsfa.org

European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: 410229080484
Fax: 41229069140
Email: esid@kenes.com
Internet: http://www.esid.org

AutoImmunity Community
Email: moderator@autoimmunitycommunity.org
Internet: http://www.autoimmunitycommunity.org

Kidney & Urology Foundation of America, Inc.
2 West 47th Street
Suite 401
New York, NY 10036
Tel: (212)629-9770
Fax: (212)629-5652
Tel: (800)633-6628
Email: info@kidneyurology.org
Internet: http://www.kidneyurology.org

Cogan's Contact Network
PO Box 145
Freehold, NJ 07728-0145
USA
Tel: (732)409-1031
Internet: http://www.coganssyndrome.info/

Australasian Blistering Diseases Foundation
St. George Hospital,
Department of Dermatology
Gray Street
Kogarah
Sydney, NSW 2217
Australia
Tel: 0291132088
Fax: 0291132886
Email: info@blisters.org.au
Internet: http://www.blisters.org.au/BDHome.html

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  1/4/2008
Copyright  1984, 1985, 1987, 1988, 1990, 1992, 1993, 1994, 1995, 1996, 1997, 1998. 1999, 2000, 2002, 2003, 2004 National Organization for Rare Disorders, Inc.

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