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It is possible that the main title of the report Spina Bifida is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
Spina bifida is characterized by incomplete closure of certain bones of the spinal column (vertebrae), leaving a portion of the spinal cord exposed. Part of the contents of the spinal canal may protrude through this opening. In the most severe form, rachischisis, the opening is extensive. Spina bifida may cause difficulties with bladder control, walking and/or other functions, depending on the severity of associated symptoms.
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Spina Bifida Association of America
4590 MacArthur Boulevard NW
Washington, DC 20007-4226
230 W. Monroe St.
Chicago, IL 60606-4802
International Federation for Spina Bifida and Hydrocephalus
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Spina Bifida and Hydrocephalus Canada
Suite 647-167 av. Lombard Avenue
42 Park Road
Peterborough, PE1 2UQ
Birth Defect Research for Children, Inc.
976 Lake Baldwin Lane
Orlando, FL 32814
Pathways Awareness Foundation
2591 Compass Rd
Glenview, IL 60026
Christopher & Dana Reeve Foundation
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Spina Bifida & Hydrocephalus Association of Ontario
555 Richmond St W
PO Box 103
Toronto, Ontario, M5V 3B1
PO Box 241956
Los Angeles, CA 90024
Spina Bifida Hydrocephalus Queensland
PO Box 8022
Tel: (07) 3844 4600
Fax: (07) 3844 4601
Chiari & Syringomyelia Foundation
290 Broadhollow Road, Suite 210E
Melville, NY 11747
Fetal Hope Foundation
9786 South Holland Street
Littleton, CO 80127
Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email email@example.com
Last Updated: 9/23/2007
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