If you are experiencing a medical emergency please dial 911 immediately
Restrictive cardiomyopathy is a serious problem that makes your heart muscle stiff. When your heart muscle is stiff, it can't stretch to allow enough blood to enter its lower chambers, the ventricles. So blood that would normally enter the heart backs up in your circulatory system.
Most of the time, this leads to heart failure. Heart failure doesn't mean that your heart stops pumping. It means that your heart can't pump enough blood to meet your body's needs.
Often the cause is never found. But we do know that there are a number of diseases or problems that can lead to restrictive cardiomyopathy. These include:
You may not have any symptoms at first. Or you may have mild symptoms, such as feeling very tired or weak.
If your heart gets weaker, you will develop heart failure. When this happens, you will feel other symptoms, including:
Heart failure that suddenly gets worse is an emergency. Get medical help right away if:
When you have heart failure, keeping track of your symptoms every day is important. Call your doctor if:
Your doctor will ask questions about your symptoms and past health. He or she will want to know about recent illnesses and about heart disease in your family. Your doctor will listen to your heart and lungs and check your legs for fluid buildup.
You may also have other tests, including:
In some cases, a doctor may want to look at a small sample of heart tissue, called a biopsy, to make a definite diagnosis.
Most of the time, treatment focuses on relieving symptoms, improving heart function, and helping you live longer. You may also have other treatment for the problem that is causing restrictive cardiomyopathy, such as medicines to get rid of too much iron in the heart muscle (hemochromatosis).
You will probably need to take several medicines to treat heart failure caused by restrictive cardiomyopathy. It's important to take your medicines exactly as your doctor tells you to and to keep taking them. If you don't, your heart failure could get worse.
Your doctor may suggest a mechanical device to help your heart pump blood or prevent life-threatening irregular heart rhythms. Such devices include a pacemaker, an implantable cardioverter-defibrillator (ICD), or a combination pacemaker and ICD. If your condition is very bad, a heart transplant may be an option.
Self-care is an important part of your treatment. Self-care includes the things you can do every day to feel better, stay healthy, and avoid the hospital.
Most of the time, restrictive cardiomyopathy leads to heart failure. Heart failure usually gets worse over time. But treatment can slow the disease and help you feel better and live longer. If your doctor finds the cause of your restrictive cardiomyopathy, then the cause will also be treated, if possible.
Some people develop other problems, including:
If your disease is getting worse, you may want to think about making end-of-life decisions. It can be comforting to know that you will get the type of care you want.
Health Tools help you make wise health decisions or take action to improve your health.
|Decision Points focus on key medical care decisions that are important to many health problems.|
|Heart Failure: Should I Get a Pacemaker (Cardiac Resynchronization Therapy)?|
|Heart Failure: Should I Get an Implantable Cardioverter-Defibrillator (ICD)?|
|Actionsets are designed to help people take an active role in managing a health condition.|
|Healthy Eating: Eating Less Sodium|
|Heart Failure: Avoiding Triggers for Sudden Heart Failure|
|Heart Failure: Checking Your Weight|
|Heart Failure: Taking Medicines Properly|
|Heart Failure: Watching Your Fluids|
|Low-Salt Diets: Eating Out|
Learning about restrictive cardiomyopathy:
Living with restrictive cardiomyopathy:
|American Heart Association (AHA)|
|7272 Greenville Avenue|
|Dallas, TX 75231|
Visit the American Heart Association (AHA) website for information on physical activity, diet, and various heart-related conditions. You can search for information on heart disease and stroke, share information with friends and family, and use tools to help you make heart-healthy goals and plans. Contact the AHA to find your nearest local or state AHA group. The AHA provides brochures and information about support groups and community programs, including Mended Hearts, a nationwide organization whose members visit people with heart problems and provide information and support.
|Heart Rhythm Society|
|1400 K Street NW|
|Washington, DC 20005|
The Heart Rhythm Society provides information for patients and the public about heart rhythm problems. The website includes a section that focuses on patient information. This information includes causes, prevention, tests, treatment, and patient stories about heart rhythm problems. You can use the Find a Specialist section of the website to search for a heart rhythm specialist practicing in your area.
|National Heart, Lung, and Blood Institute (NHLBI)|
|P.O. Box 30105|
|Bethesda, MD 20824-0105|
The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:
|National Institutes of Health Senior Health|
|9000 Rockville Pike|
|Bethesda, MD 20892|
|Phone:||1-800-222-2225 Aging Information Center|
This website for older adults offers aging-related health information. The website's senior-friendly features include large print, simple navigation, and short, easy-to-read segments of information. A visitor to this website can click special buttons to hear the text aloud, make the text larger, or turn on higher contrast for easier viewing.
The site was developed by the National Institute on Aging and the National Library of Medicine, both part of the National Institutes of Health (NIH). NIHSeniorHealth features up-to-date health information from NIH. Also, the American Geriatrics Society provides independent review of some of the material found on this website.
Other Works Consulted
- Hare JM (2012). The dilated, restrictive, and infiltrative cardiomyopathies. In RO Bonow et al., eds., Braunwald's Heart Disease: A Textbook of Cardiovascular Medicine, 9th ed., vol. 2, pp.1561–1581. Philadelphia: Saunders.
- Hoit BD, Gupta S (2011). Restrictive, obliterative, and infiltrative cardiomyopathies. In V Fuster et al., eds., Hurst's the Heart, 13th ed., vol. 1, pp. 865–875. New York: McGraw-Hill.
- Hunt SA, et al. (2009). 2009 focused update incorporated into the ACC/AHA 2005 guidelines for the diagnosis and management of heart failure in adults. Circulation, 119(14): e391–e479.
|Primary Medical Reviewer||Rakesh K. Pai, MD, FACC - Cardiology, Electrophysiology|
|Specialist Medical Reviewer||Robert A. Kloner, MD, PhD - Cardiology|
|Last Revised||July 24, 2012|
Last Revised: July 24, 2012
Author: Healthwise Staff
To learn more visit Healthwise.org
© 1995-2013 Healthwise, Incorporated. Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.