My Sanford Chart allows you secure online access to your personal health information and your child's health information. It's available anywhere you have internet access. There is no cost to you and registering is quick and simple.

Sign Up for My Sanford Chart
Study ID: BioMarin MPS VI CSP
Title:

MPS VI Clinical Surveillance Program

Description:

The purpose of this study is to characterize and describe the MPS VI population as a whole in a registry, including the differences, progression, and natural history of MPS VI. Participants in this observational study have been diagnosed with mucopolysaccharidosis VI (Maroteaux-Lamy Syndrome or MPS VI). MPS VI is a genetic disorder that results in the build up of sugar molecules called glycosaminoglycans (or GAGs) in body tissues and leads to a variety of physical problems. Physical problems may include among others, decreased growth, nose, throat and ear problems, heart disease, bowel problems and bone and joint problems. Other objectives are to help the MPS VI medical community with the development of recommendations for monitoring patients and reports on patient outcomes to optimize patient care and also to evaluate the long-term effectiveness and safety of Naglazyme.

Location:
Sioux Falls Region
Principal Investigator:
Laura Davis-Keppen
Disease:
Other
Stage:
Post Marketing

Status:

Active - Open to Accrual

For more information, call or email Bismarck Clinical Research at (701) 323-5760, Fargo and Bemidji Clinical Research at (701) 234-5890, or Sioux Falls Clinical Research at (605) 328-1368.

Back to Clinical Trials list